Stroke patients all over the world continue to struggle for complete recovery. Time of their life gets wasted when contemporary treatment is palliative and training given to them is to learn to compensate for the loss andwaitfor recovery of affected side saying recovery takes time. After waiting for months, patients are told recovery has plateaued and they have to learn to compromise with loss. Patient dilemma is they are told ‘recovery takes time’ in acute state post stroke and in chronic state they hear it is too late, recovery after six months is difficult and after one year more difficult and plasticity of brain may help them to recover in chronic state but how and with what is not known to them. Struggle of the patients and their family seeing deteriorating life of their dear ones is evident from posts received from all over the world. Some of them are given below.
Note: We've either removed or abbreviated names of the patients to protect their privacy
My name is T.R.. I survived a stroke caused by blockage in the Pons area of the brain on December 13, 2007. I am working hard to achieve some level of normality but am aware of the possibility of developing bad habits.
I can walk to some degree without a cane though I have been using an AFO to assist with foot drop and a knee brace to prevent hyper-extension.
I have some arm movement but little motion in the fingers. I suffer only at night from cramps and fisting.
I would be very interested to learn more about the Vasa concept. I am not wealthy and find that most programs are more interested in what I can pay than my recovery.
Looking forward to your response
My father Geoff had a very serious stroke 3 years ago. He is currently in a wheel chair, can walk a few steps with a stick and has little use of his left arm and has a spastic left hand. He continues to have physiotherapy treatment but to no avail. His physiotherapy to date has been of a passive nature and has not challenged Geoff to make independent recovery.
I have become very interested in hypnotherapy and NLP and will shortly be retraining in these areas after 20 years as a Chartered Accountant.
My feeling has been that the power of the brain is the only way to gain mastery of the body again and found your website this morning whilst searching for information to support this feeling.
Is there anyone in England who is practising your VASA concept. We live close to London.
Thank you very much
It is fantastic to be in a position to be able to make such a contribution in a lifetime.
The great gift will be to show that stroke sufferers can be helped significantly - from the knowledge that I have gained during my father's illness, the medical profession in the UK quickly write-off any prospect of recovery in the majority of cases, their main being to make people comfortable but without providing any hope of useful recovery. To put the power of recovery into the hands of stroke sufferers and their families would be wonderful - the medical profession would have to take notice and provide more resources. Additionally there would be significant employment for additional helpers.
Thanks - the beauty of your concept is that it hands back control of the recovery process to the patient and carer. I believe that we should be in control, as far as possible, of our bodies and our physical and mental health. We can't afford to leave it in the hands of doctors and drug companies, because this leads to loss of our innate powers and of personal responsibility and motivation. Unfortunately the lack of responsibility for ourselves is endemic in the UK with millions eating bad food, smoking and taking little exercise. It follows that heart disease, cancer and stroke are the biggest killers. Only comparatively recently have public authorities begun to warn of the dangers, mainly driven by the unsustainable cost to the National Health Service and the taxpayer. It follows also that the level of care offered to the aged and the poor is inadequate and stroke victims like my father are given drugs and anti-depressants rather than a program for recovery.
I have already seen the change in my parents from handing them the power to achieve recovery through your guidance. They are much happier, my father has much more life about him and my mother is much more positive. I read your words to them and they fill them with hope and motivation. It means a lot to me to be able to help them in this way.
I am so pleased that I found your website as it has breathed new life into our fight for my father's recovery which was looking impossible before.
We are all hoping that my father will make a significant recovery and we would be very pleased to be in a position demonstrate the success of your methods and to encourage others to follow. It will be something like a miracle as for 3 years he has been told not to expect any significant improvement.
I wish you every success possible and sincerely hope that we can provide evidence to others for the effectiveness of your methods.
I am 48 years old,I had a car accident 18 years ago,a bleed on the left side of brain,resulting in right sided hemi-plegia,one year in hospital,got out of wheelchair,left stick behind,a lot of physio and exercise,still do a lot of exercise but I am always left with tightness and spasticity,I feel I could do better with a different approach,I am a positive person,this has kept me going,
I live independently and woulw like a better result for a lot of hard work,
My mother-in-law has recently (August 22, 2006) suffered a pretty serious stroke. She is 75 years old. It is not the first one she has suffered. From prior strokes, she had lost feeling in the left side of her body and although she could use it, it was not normal use. Unfortunately, after recovering from a mastectomy she suffered another more serious stroke. This one has left her with little control of any part of her body. She has lost the power of speech and cannot really even communicate in any other meaningful way on a consistent basis (can’t control her blinking or head nodding). Prior to this stroke, her “good side” was her right side. However, now she has completely lost the use of that side and barely can use her left side at all, but the family has already taken to calling that her “good side” now.
I have read some good things about your program on the internet and would be interested in getting her stared on your program, but am unsure what to do to get her started. She has shown very small signs of improvement with my wife (her daughter) and her sister. However, when other doctors or therapists or “strangers” come into the room to ask her to do the same things, she clams up and will not even try to respond.
I will continue to review your website for further guidance and hopefully answer some additional questions, but I would appreciate an e-mail response from you as soon as you get the opportunity. Are there any other questions you need answered before we can make the determination if she will benefit from your treatment program? If so, please let me know what they are and I will try to provide you with that information. Thank you for your time.
S. J. B.
My name is Sarah, I had a brain stem stroke 2 1/2 years ago. I am very interested in your concept because motor is my only problem. My stroke left me completely paralyzed. I can't walk or stand up. My right side is better but not "good."
I have been reading your ebook and I read your update on balance. My balance is... I feel like I'm nailed to the ground; it seems impossible to lift my foot off the ground unless I'm holding on to the bars. Are exercises listed further in the book? (I'm only on page 23!) Do you have any specific advice for my condition?
I was just wanting to touch base about my Dad's stroke, it happen about 4 months ago, it was massive affecting the entire left side of his brain. He could not swallow,speak and total right side paralysis. He has other health problems; diabetic, irregular heartbeat etc. They, in no uncertain terms told us he would not live when it first happened. He is 60 years old. He can now swallow, eats anything he wants. He speaks a few words mainly cuss words, other than that not much on speech. He still can't move his right arm, he can move his right leg some, we do exercises with a slide board and he is getting stronger with pushing his leg down and pulling it in, not so much with pulling the leg back up or pushing it out. He is at home now PT comes in 2 to 3 times a week. I however do these simple exercises with him everyday. He fusses sometimes but is pretty good about helping, he tires very easily. I am hopeful that he will someday walk again, he will kick his foot out to walk with a cane like thing and with the PT, however he seems scared of the leg, as if he doesn't trust that it will hold him. I just wonder if I am doing the right thing in exercising him, I also get him to stand at the kitchen sink, shifting back and forth to get him to place some weight on that leg. As far as his arm, it is almost 3 fingers out of socket and seem very,very painful. Anytime I touch his arm to exercise it or just to straighten his fingers out he yells out in pain. He doesn't ever complain with pain with his leg. He doesn't seem to be sensitive to touch, hot or cold. I am just looking for any advise that you could give me. He is so precious, before he was kind of rough & tuff in personality, but now I see a innocence about him that is almost childlike. He seems to understand everything you say and what goes on around him, just can't speak. He loved to play cards, so we still do that and I am amazed at how he doesn't miss a beat when it comes to this. I still can't seem to beat him and he loves it. The other part of this that is so hard is the emotion, he cries now and I am having a hard time dealing with that. I can take him shouting his cuss words when he's mad at me, but the crying..... that's a different story. I guess it's even harder because he can't tell me what is wrong. Before this I can remember seeing him cry only 2 times. It is very hard. In closing I thought we had lived through some hard times, he was beaten by his father whom also sexually abused several of his granddaughters me being one of them. My Daddy has always been special to me because he was my protector, now I feel I have to protect him. To date this is hands down the hardest thing I've ever had to go through. Please help me.
i saw your webpage today and was very impressed. i am hoping you can help me. i suffered a cva stroke in December of 2005. sine then i have very little use of my left side. i have been in therapy since that time but my situation has improved very little. my insurance is now exhausted. i have little money but a great will to improve, can you help?
Hello Dr. Rajul Vasa,
I just read you website and I am very interested. I live in Los Angeles, CA and I suffered a stroke a year ago effecting my right side. Currently, I walk with a limp, because my ankle is not triggering properly. Also I have trouble using my right hand & arm correctly because of the tone. I would like to write & type again with my right hand and walk & run again without a limp.
I believe you can help me. Please let me know.
Hello Dr. Vasa,
My name is L. McW, I live in the United States and found your web site while searching for therapies for my wife of 42 years Carole who had a massive ischemic right brain stroke on May 9th 2008. As a result she has paralysis in her left arm and left leg with spasticity especially of the left arm and left hand. She has been through two rehab centers and is showing slow improvement but the progress is painfully slow. She is walking with the aid of a "hemiwalker" and assistance from me. Her fingers are very stiff but she is able to muster a small amount of movement in them too.
I was wondering if you had a program via email that I can administer to my wife? She is the love of my life and it almost kills me to see her with this disability. Your program sounds very encouraging and I do hope and pray that you have a program via email that would work for her.
I need some help with my stroke rehab. I had a stroke three years ago and after multiple years various of therapies including oxygen therapy and botux shots I still have a lot of tone in my shoulder and I have trouble reaching, straighting my elbow and walking. My left side is weak and I walk with an AFO and I'm unable to wiggle my toe or ankle on my left side or bend my knee on the left side too. When I walk I actually use my hip to lift my leg. I'm 52 years old and I'm diabetic with high blood pressure.I'm currently taking a page and a half list of prescribed pills
I have been reading with interest about your approach to rehabilitation of stroke patients.
My husband who at the age of 61 was a fit and active man, had a massive intracerebralhaemorrhage last November 2008. After which he had other life threatening illnesses, septacemia, DVT and pneumonia. He finally came home in February this year. I was told he would gain no improvement in his mobility and speech. They told me he would never walk or move his right arm as it was dense hemiplegia. We have worked hard with Peter and he is now able to move his right leg. There is no movement with the arm/hand, but he now has sensation. I have been told he has dyspraxia, dysarthria and dysphasia. We work very hard daily with exercises, but after reading your website I am now worried we may be doing more harm than good as he has been receiving Bobath treatment and electrical stimulation with the muscles.
I would very much like to learn more about your exercises/methods as I am now reluctant to carry on with the exercises given me by physios if I am helping him learn bad habits. My goal in life is to help Peter reach is optimum recovery so that we can enjoy our retirement years, after many years of hard work.
Will you please let me know how I go about getting Peter involved in your treatment.
I am so excited (and hopeful) after a long search has led me to your website. My mother suffered a left-hemisphere stroke in December of 2008 (14 months ago). She was left with little movement in her right arm and leg (she also has aphasia which has been most challenging as well as other obstacles that we have had to learn to overcome; i.e. swallowing difficulties that meant a feeding tube for the first three months. She eats on her own very well now. There were also bathroom issues that have been much improved). Now she is experiencing painful spasticity and finally is willing to listen when I preach about exercising and not simply waiting for everything to get better – your comment about therapists and doctors saying “it takes time” was so familiar as we have heard that too many times to count – I’m afraid my mother was convinced that’s all it would take.
Your approach seems the logical to me. I do not know what information you need in order to advise us of the proper exercises or even if you can do that. I am praying that, somehow, we can get help and advice from you on a long distance basis. Travelling is not possible with my mother.
Briefly this is her situation: She walks with assistance (a four-legged walker she uses with her left hand and someone holding on to a belt around her waist in case of loss of balance). She has exercised the upper part of her leg to the point that the muscle “pops up” when she does leg lifts from a sitting position (bending at the knee and kicking straight up/out). Her leg has gotten stronger; she is able to stand on it (we perform an exercise having her standing and shifting her weight from the strong leg to the weak leg then back and forth for a few seconds on each leg). The main problem is the weakness of the ankle which turns over (outward) when she tries to walk. She was recently fitted with a flexible-type brace that goes under her foot in the shoe and up her calf – this keeps the ankle from turning and has given her more confidence when walking. We are trying to have her wear this for several hours per day as advised by her therapist – is that the correct thing to do? She performs several small exercises with her arm, hand and fingers; she is constantly holding her arm and straightening her fingers (she has never neglected her arm). The therapists have given up on her arm (without saying this aloud of course). We are at a loss as to what to do next.
Please, Rajul, help me if you can. This situation has all but physically and emotionally exhausted my family and we don’t know where to turn next. We cannot come to you but if you have any material that I may purchase, I would be so grateful.
Thank you for your time.
Dear Dr. Vasa,
My mother suffered from aintracerebralhemmorrhagic stroke on her left side on August 18th 2006. She had a surgery to stop the bleeding and reduce the swelling in her brain ( keep in mind that the physician gave us an option either we let her die slowly or perform the surgery with a poor outcome).
The Neurosurgeon gave her 3 days to live..then after the 3 days gave her 5 days to live...then he said that she would be on a ventilator and trach for the rest of her life. Just after a few weeks she was off the ventilator and after 2 months she trach was out. My mother started out at Shady Grove Hospital in Rockville, MD, then we heard of a brain injury center in Baltimore, MD , University Specialty Hospital..she was there for 3 months...here she came out of the coma after 4 weeks.
To make a long story short....University Specialty Hospital gave up on her..if it wasn't for the nurse who saw and was able to interact with my mother and see her alertness they would of kicked her out of the program.
She has past the swallowing test, and is know at Bethesda Nursing and Rehab located in Bethesda, MD..here she is finally getting the care and assistance that she needs. The speech therapist has already heard my mom say the word no. The PT have been working hard on her since her arrival January 19th. However, today they gave us the news that because my mother doesn't have that "spark" in her body that they can not continue to work on her. My mom moves her neck, she tracts and shows expressions ( crying, laughing these are purposeful expressions) She has developed contractors on her right arm..and her left foot has turned inward, her right foot seems fine for now. She hold her neck up and look both left and right..although sometimes she tends to want to look at the right and her neck get's stiff...we use to think that it was because she wanted to be alone...but the PT said that it's a reflex.
After hearing this news...I decide to look at other options for my 59 year old mother...who I know is in there and wants to move and is very strong...she has to be to come this far..I saw your website..and spent hours reading over and over the testimonials, and know and believe in my mothers strength that she will one day walk and talk again.
When you have a moment can you either email or mail me some information on your Vasa concepts...and from what I wrote is this something that will help my mother. Thank you for your time.
N. Potomac, MD
Dear Doctor Vasa,
I am writing to you from Paris (France) : I found your web site by searching web sites about brainstrokes via “Google”
I am 34 years old, I am a barrister, and I had a brainstroke in June 2005 (ischemic brainstroke in the right side)
My left leg, foot and hand have been paralysed eversince.
During the first six months after this stroke, I could not walk at all, so I was in a wheel chair.
I started to walk very slowly in January 2006 with a special stick (stick with 3 feet)
Now I walk without stitch when I am at home but when I go outside in the street to go shopping or to the doctor’s, I need a stick and a splint which goes from the foot to my knee.
I can move my arm just a very little, but my hand is still paralysed : I can only use it to hold something but I have to put the object in it with my right hand first (I can close it but not open it .
I work very hard with physiotherapists and I also see an acupuncture Doctor once a week, but I am scared of the future, and sometimes desperate, because the doctors of the first hospital where I was admitted told me that my arm and hand would remain paralysed for my whole life, which I can not accept : I refuse to live handicaped, if a single handicap should remain I prefer to die.
I don’t know what to do, and would like to consult you, but you are very far, in India.Is it possible for you to come to Paris ?
And I have a question : I understand English but I don’t understand the words “channelise” and “CNS” in the parts “My mission” and “Recovery” of your web site I looked for a translation in my dictionnary but I did’nt find any. Could you explain to me what it means ?
I hope very hard that you will answer to me
Dear Ms Raju lvasa
My relative aged 70 and diabetic sufferred a right hemispheric cortical infarct involving posterior limb anterior capsule and part of superior thalamus 6 months ago with normal fields,speech and cognition and a sensorimotor left hemiplegia. Now he has good proprioception and sensory awareness of both his hand and foot. His hemiplegia recovered to a hemiparesis.
He has gait and balance difficulties; I hope you would be able to give me some advice about how to address these.
He had received traditional physiotherapy based mainly on orthopedic rather than neurological standpoint; which has now ended and I am trying to do the therapy for him at home; that is why any advice would be very helpful and much appreciated.
There is no extensor synergy in the lower extremity, hip abductors and extensors are weak leading to a right pelvic drop during left midstance. hip flexors and hamstrrings are weak also making intiation of left swing very difficult because he cant achieve proper toe clearance as his dorsiflexion is only perhaps to neutral with a toe catch. In addition there is a marked toe curling due to hypertonicity appearing on lifting the foot off ground and persisiting during left stance so he lands on the tips of his toes causing him pain and instability. it is probably part of a withdrawal mass synergy reflex. the upper extremity is much weaker with a marked dynamic flexor synergy.
I have attached a video of his gait for you to kindly assess please if possible. it may need an mpeg2 decoder download to open.
I hope you would be able to give me your advice as how to help him.
thank you very much and i look forwards to hearing from you at your earliest convenience please.
Dr H.S.S, MD
Lecturer of Ophthalmology
Respected Dr Vasa,
I , SeemaSampat would request your kind self to allow my mother Ila P Parekh to get treatment under your supervision , Her history was of brain Stroke,She suffered a severe slurring of speech on 9th of Feb 2011 with BP 240/140 , When we reached hospital she had a severe brain haemorrage . There was a mid line shift and needed a craineatomy on the left side immediately. She was on ventilator for 10 days , DR SaroshKatrak (her neurologist ) said it was "GLOBAL AFISIA" .
No comprehension, no speech , no understanding and dense hemiplegia on right side. Gradually after tracheostomy got sealed speech came back but it is JURGAN and irrelevant talking and cant understand anything. Few words come naturally and fluently.
We have heard about you from patients and other fellow being in the sanatorium , They all vouch for you and personally imy self was touched to see the vast difference you have made to patients life.
Mam give us an opportunity to work under you ,We will equally work hard with your guidance at home.
We here want to achieve that patient should get independent at least be able to speak and and convey her thoughts and understand our commands .
My father is a Parkinson patient and is bed ridden . It was my mom who did all the work for him. I do not have any sibling. Mother looked after my 3 year old son , He expects Nani to tell him stories .Its my mothers will power who wants to bounce back for her husband and my son.
It was a GOD send message that we got privileged to know you. Thank you for being a light in our lives and guide us , So many of us would be indebted to you all through out our lifes.
Kindly give is an opportunity to work under your kind self.
I have gone thru your site www.brainstrokes.com and the testimonial and videos , I am very touched by the way patient have made progress under your supervision , The confidence within me has increased 3 fold after seeing and reading about you and your work and dedication , Yours is a totally different approach balancing with exercise , power etc. The healing process of brain generally deteriorates after a certain time but my view changed after reading the testimonials on your site.
My trust and confidence has increased so much that this is the only way i will get my mom out of it ,Infact she as a patient saw others at Moorarji sanatorium and was her self determind to do work and speak well.
under your guidance Its different and very worthy. What we have done in past 1 month after her discharge like physio and speech therapy hasn't shown us much of a improvement,
After watching all your patients working towards one goal under your supervision was indeed a ray of light to us as a family that Yes my mom can also recover with your unique therapy for brain strokes.
Mam we need your blessings and your single touch to my mom with our full support will change her life .
I stumbled across your site in search of correcting my walk, balance, and general proficiency of my left side. Almost 10 years ago, when i was in elementary school, I suffered a stroke. After being examined at the hospital, It was found that I had a brain tumor, meduloblastoma I believe it was called. Prior to the surgery for removing the tumor I only recall trouble (in my left leg and balance) walking..otherwise I didn't do much movement. After surgery though, I could barely move or control my left side. My parents and I were told that some of the nerves to my left side came out with the tumor. They thought I might not walk again. After use of a wheelchair, walker, and cane for about 3 years, I can walk unassisted almost naturally but still awkward and clumbsily and use my left arm for simple tasks. This, as well as not being able to run, jump, and catch makes me very self conscious. I would like to be back to normal, and I am seeking any help or advice you could give.
Hello Rajul! So wonderful to visit your website and read about the Vasa Concept. I am very interested to learn more.
I had a massive stroke one year ago at age 30 - due to the birth control pill causing a blood clot (pulmonary embolism). Today, my recovery is well except my foot and hand , left side, they both suffer spasticity - the spasicity is in my calf muscle causing rigidity in my foot, toe curling, etc - but no contracture yet. My left hand - flexors work well but my extensors not working... so foot and hand suffer similarly.
What can I do? I have had botox treatment on my calf, this helps the walking but I know does not help the root of the problem. How can I get my hand to open voluntarily? I dream of being able to type 2 handed again.
Please let me know more - how can I get informatioin on these specific things? I already do so many exercises each day - I thiki need something more than exercise.
I appreciate your help - please write back soon!
Hello Dr Vasa,
My name is M, my family and friends call me Mel, please feel free to call me that too. I have just come across your website, and I am so excited! I hope you can help me. I did not have a stroke, but I had a brain bleed on the right side of my brain five years ago in May. I have been left with partial paralysis on my left side. My body has become a lot stronger than it used to be when the bleed initially happened, but it is still weak, and I walk with a limp, being manly due to the fact I have quite bad foot drop and have to swing my leg to clear my toes so I don't trip up, the toes on my left foot curl up when ever I walk, it hurts sometims. I have also noticed my left leg has become quite a bit shorter than my right leg, which I guess makes the limp worse? Even my left lung and left side of my stomach muscles seem to be very weak. I cant swing my left arm back in a full circle, it feels like something stops it from making the full motion. My speech is fine, although i do notice at time my mouth and lips get a bit weak and slurry if that makes sense? When it first happened, I was in the hospital with my family around me, the Doctors walked in on only the second day I was there, and told me that i should be prepared for the fact I might never walk again, this was even before they had started me on physio therapy, which I have found quite useless in my efforts to get back my control. But I fought my way through, and I went from a bed, to a wheel chair to crutches, now just to wearing a foot brace to help with the foot drop, I feel proud of myself. I have fought through the depression, even though there are days I feel angry and sad and frustrated that I haven't been able to find a simple miracle that I knew in my heart was out there, but tonight, I know I found it in the incredible work you do, I feel this is what I need to heal and recover completely, and I know that I will recover completely, I always have. I am so desperate to have my body back, the freedom I once had, such joy it was, and something I always took for granted. Some days I sit and watch people walk by, and I think to myself, wow, you are so lucky to be able to walk without even thinking about it, without a care in the world, that's how i used to be, I deeply desire to be not lucky, but blessed to walk this earth so freely like that again. I ask you to please help me, I will be an excellent student, I will work hard everyday, and I will spread the word of your amazing work to those I know who are just as desperate as I am to be free again. I live in Australia, but I will be moving to England to be with my husband, I'm very sorry but is there anyway you would be able to work with me if you have time, from distance? How much will this cost, I am happy to pay what ever you say, somehow I will find the money that I need to do this work along side you, my teacher and healer, if you can help me, I would be forever grateful. Please can you contact me as soon as you are able.
p.s. I can’t wait to put on a pair of high heels again and go dancing with my husband :) I know I will one day soon.
Dear Dr. Vasa,
I come from Slovenia (Europe) and my English is not good. I found your pages on web and I think you may help my mother. She is 73 years old. She had major ishemic stroke 8 years ago. It left her left side paralyzed (mostly her leg). Her balance is also very poor. She walks very slowly. 6 years she walked with cane, but now she doesn't use cane anymore although she walks slowly. I think her major problem is balance. Somethime she has muscle cramps. She also has intential tremor.
I would like to help her. Can you send me please any information about your concept and about payment?
Thank you very much!
With kind regards,
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