Stroke patients all over the world continue to struggle for complete recovery. Time of their life gets wasted when contemporary treatment is palliative and training given to them is to learn to compensate for the loss andwaitfor recovery of affected side saying recovery takes time. After waiting for months, patients are told recovery has plateaued and they have to learn to compromise with loss. Patient dilemma is they are told ‘recovery takes time’ in acute state post stroke and in chronic state they hear it is too late, recovery after six months is difficult and after one year more difficult and plasticity of brain may help them to recover in chronic state but how and with what is not known to them. Struggle of the patients and their family seeing deteriorating life of their dear ones is evident from posts received from all over the world. Some of them are given below.

Note: We've either removed or abbreviated names of the patients to protect their privacy

Letter 25 - Stroke Therapy

Dear Dr Vasa,

I trust this email finds you well.

You have been highly recommended to me by one of your more recent patients, a little girl whose name I believe is Carmen (I may be incorrect, as I lost all their contact details when my purse was stolen recently). She is from Durban, South Africa, and recently spent 24 days in intensive therapy with you in India. She has made an amazing recovery under your guidance and according to her mum, is now performing exceptionally at school, even though doctors said she would not walk or talk again after her stroke.

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Letter 24 - My husband had a stroke

GREETINGS

I HAVE JUST FOUND YOUR SITE AND READ A GREAT DEAL OF THE INFORMATION IN IT.

WHAT IS INVOLVED IN GETTING SOME HELP FROM YOU FOR LARRY, MY HUSBAND? HE HAD A BLEED ON THE BRAIN, AND WAS LEFT PARALYZED ON THE LEFT SIDE.  THIS HAPPENED ON AUG 1, 2008...HE HAS BEEN IN REHAB FOR SEVERAL WEEKS..HE IS WALKING WITH THE AID OF A LEG AND KNEE BRACE WITH MINIMAL ASSISTANCE. HE STILL DOES NOT HAVE USE OF HIS HAND AND HAS SOME MOVEMENT IN THE ARM. WE HAVE GREAT FAITH IN GOD, AND BELIEVE THAT GOD GAVE US ALL THAT WE NEED TO HEAL WITHIN OURSELVES.

THEY DO NOT SEEM TO THINK WE WILL ADVANCE MUCH MORE HERE AND WILL BE RELEASING US SOON. CAN YOU HELP US FROM THIS DISTANCE AWAY....WE DO NOT HAVE INSURANCE...HE WAS A VETERAN AND IS IN THE VA HOSPITAL.

THANK YOU FOR YOUR TIME

J & L

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Letter 23 - Our Grandma had a stroke

Hi Dr. Vasa,

I am a fourth year medidal student in the US writing to you. My grandmother suffered from an ischemic stroke of the right middle cebral artery three days ago. She is a visitor from Albania and cannot get medical insurance here in the US so she cannot go to a rehab facility. My brother and I are very interested in giving her rehab now that she is home. She can still move the right arm and leg against gravity and pushes against resistance. She cannot walk by herself and needs two people to support her with a walker. It is strange to us because her strength in the left side seems good.

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Letter 22 - Le Spasticity

Dr. Vasa,

I am a 40 year old stroke survivor living in the U.S.  I am 1 year post-stroke.  My stroke was the result of a clot on the right side of my brain.  I have recovered reasonably well.  I can do all I need to do, but not all I want to do.  I limp sometimes and can't jog/run yet.  Previously, I loved sports such as basketball and want to do that again.

The biggest issue that is impeding my further progress is left leg spasticity.  My left leg is often sore and stiff, especially in my upper quad muscles, affecting my gait and level of activity.  I stretch daily, exercise by walking, take Zanaflex  at night, but can't overcome this left leg muscle tone issue.  I do not want to accept this as a permanent condition that will always limit my activities.  I came across your web site on a stroke forum and it looks interesting.  Is there anything else I can do to help myself with spasticity?

Sincerely,

J.T.
Canton, GA, USA

Read more: Letter 22 - Le Spasticity

Letter 21 - Stroke

Dear Dr.Vasa

My husband, at the age of 74,  had a major stroke 5 months ago. He recovered well with the exception of his left arm which now just hangs. It has  also left him with considerable pain in the shoulder. I am not too happy as the only medication he has been offered is stronger & stronger pills which just leaves him very tired & somewhat confused. Any exercises he has been given have not been beneficial & I would be very grateful if you could point me in the right direction of anyone in N.Z. that might be able to help him. Jim was a man who always kept himself very fit & one who would work hard to get himself in good condition again.

Thank You

Regards,
H.P.

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Letter 20

Dear Dr Vasa,

I have recently seen your website and would like some further information about your treatment program. My father, aged 67 had a stroke on Feb 11 this year. His scans showed a right thalamic hematoma. He has left sided lower facial weakness and dense left hemiplegia with hemisensory deficit. He is currently in a rehabilitation hospital in Melbourne, Australia.

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Letter 19

Dr Vasa

I have recently ran into your website and have found it very promising. My 30 year old sister had a hemorrhagic stroke on 2/9/2009. She had emergency surgery on the same day, and was comatose for 20 days after that. During this time she developed MRSA on her wound and meningitis. She was on antibiotics for 14 days and eventually awoke. She was non talking, eating, walking, etc when she came out of her sleep.

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Letter 18

I have had a hemiplegia on my right side, for the past twenty eight years, but as I say in this poem I have struggled, been though some dark stages over it, but have used my hands to type/write my poems that have helped, entertained and inspired people over the past fourteen years. And I wanted to express my experiences with this impairment and hope it can be used in a newsletter/website to offer support to others that have or are going though similar occurrences in which I have felt, I look forward to hearing back from you.

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Letter 17

Dr. Vasa,

I got your information from reading on the Internet.

My scan was done 30/Jan./2006 the day of my first stroke; a left mid-brain Hemorrhagic Stroke.

I suffered another stroke sometime during the recovery, we think in August or September.  That is the time I started going downhill.  I developed a tremor in the effected side (right) my dominate side.  Next came the right Leg.  My Neurologist treated me for muscle spasticity. I went to a rehab facility and there I was diagnosed as having a second stroke.

Another Neurologist confirmed the diagnosis.  Both effected the same right side.  I lost partial balance and have double vision, uncorrectable with prisms, along with dythargaria after the first stroke. I have stiff knee gait and loss of remaining balance plus Ataxic moment in my left Arm after the second stroke.  I walk very poorly, aided by a walker.  My goal is to walk and drive an Automobile. I want to regain as much as possible without being greedy.

Would you be so kind to send me information on your program, including cost?

Regards,

D.H.K

Read more: Letter 17

Letter 16

I have a loved one who has had a brainstem hemorrhage located in the pons. I was told from the first day to take her off life support and that she would never regain consciousness, wouldn't be able to breathe on her own and another CT scan would show increased bleeding with downward pressure on the brain stem. Within 4 days she had opened her eyes and would blink when asked some questions.

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