Stroke patients all over the world continue to struggle for complete recovery. Time of their life gets wasted when contemporary treatment is palliative and training given to them is to learn to compensate for the loss andwaitfor recovery of affected side saying recovery takes time. After waiting for months, patients are told recovery has plateaued and they have to learn to compromise with loss. Patient dilemma is they are told ‘recovery takes time’ in acute state post stroke and in chronic state they hear it is too late, recovery after six months is difficult and after one year more difficult and plasticity of brain may help them to recover in chronic state but how and with what is not known to them. Struggle of the patients and their family seeing deteriorating life of their dear ones is evident from posts received from all over the world. Some of them are given below.

Note: We've either removed or abbreviated names of the patients to protect their privacy

Letter 35 - Help on stroke patient

Dear Dr Rajul,

I was fascinated by your method of stroke treatment and i must say how great a person you are to give stroke patients a new lease of life.

Two days, my dad was admitted to the hospital for the first time for a major stroke as advice by the doctor. His left brain was said to be extensively damaged and the movements on his right were affected. He had also lost his speech as a result of the relapse.

Currently he was in stable condition but still requires observation. What worried me and my family most is his recovery, and the rise of his blood pressure makes it worst.

My father is an active person who likes to moves around and i can imagine his despair and devastation when he is bed ridden and and unable to communicate.

During the past 2 days, he was tied to the bed by nurses for trying to get up of the bed by his left side of his body.

What puzzles me is that I was told by the nurses to advice my dad to stay calm and not to move too much. Their reason is that his movement may causes much agitation and frustration in himself which could cause the blood pressure to increase and now the most important ting is to keeep his pressure low. That makes sense some how but also at the same time contradicting.

I understand from other doctor that it is essential to communicate with the patient so as to stimulate his neural system and heighten his recovery rate. But now i do not know what should i do.

To calm him down to lower his blood pressure or to communicate to him more and encourage him to move his paralyse part of his body?

As your concept of recovery treatment is based on mind focus, i would like to hear your valuable comments on my dad's current situation.

And once again thank you for reading and all you have done for the stroke patients and their family members.

Cheers and may God bless you.

Warmest Regards,

M

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Letter 34 - Stroke in the Thalamus area in the brain

Hello Rajul

RE: Stroke in the Thalamus area in the brain

You say this on medhelp.org

"Do not let any one touch the skin of the painful area -- This is a must.  Including your own touch"

WHY ?   What could this cause?

And you say:

"Move good hand on the skin area on the affected painful side   Repeat for as long as 5 hours a day and the pain will vanish"

Is this related to the VASA concept? Why will this work to alleviate the pain

I am asking for someone who was just diagnosed last week with Stroke in Thalamus Region of the brain

Thank you for help.

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Letter 33

Hi Dr. Vaja,

I was wondering if you have a book on your suggested exercises? I am a 36 yr old avm stroke survivor with left sided hemiplegia. the stroke happened on 7/14/07 and it was a bad one. I was not expected to live. my hand barely works at this point though I have literally done hundreds of hours of work on it! I have been able to develop a decent pinch between the forefinger and thumb by using a small pegboard. I can pick up small pills  and put them in my mouth now.If my hand is placed on a glass, I can drink from it but my hand cannot open due to weak extensors, muscle tone, and soft tissue shortening now. I now use no cane but walk with a bad limp and cannot run right. I am working towards walking with minimal limp, possibly running short distances in the future, and playing guitar again. I know everybody probably says this, but I am an incredibly hard worker on my rehab. I have put more time into it than anybody I've met thus far. I am returning to work at Genentech as a biochemical engineer manager on 7/1/08.I luckily suffered minimal cognitive damage despite the fact that I have a fairly large hole in my brain!

This stroke will not stop me from being me!

thank you,

T.M.

please let me know if you've published your methods

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Letter 32

Om Shanti

Dr.Rajulji,

My husband was very active all his life, entered business at the age of 16,very confident even at that age,challenged his father to open an office in Japan without any financial help.He succeeded & went on to open Singapore,Indonesia.After we got married in '66 he tried the west.We started on a smaller scale in Nigeria & with luck he expanded,he opened embroidery factory as well.He was very popular & loved by his unlimited friends(they still visit us when they come to town)They really miss him as he used to be the soul of every party.

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Letter 31 - I am seeking help/treatment please!

I am a 25 year old female "stroke hero"On 9-18-08 I had a dissection of the coratid artery at the age of 24!

I would be interested in recieving exercises!  My left side is " paralyzed"Balance is poor etc.  Sometimes I still use a can!?

Please let me know what I need to do /send/contact!  I am in the  US?

Thank You so much,

L.R.
Hartselle, AL

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Letter 30 - Stroke Recovery

I am very interested in the VASA concept for my son's recovery.  He is about 10 months post stroke and only 22 years old.  He suffered a hemorrhage as the result of a tumor resection which resulted in right side hemiparesis.  The tumor was located in the left temporal lobe and measured about 5-6cm across.  My son's neurosurgeon was able to remove the entire tumor during a 10 hour "awake" brain surgery in Sept of 2008.  At close, my son had full movement and speech and was placed in intensive care recovery.

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Letter 27

Dear Dr Rajul

I suffered a stroke on April 11, 2007 (severe CVA with left hemiparesis). 
I am functional in that I walk with a Walkaide (TENS unit) for my dropfoot.  I also use a cane.

Am able to walk without the Walkaide but not as well or as fast.  Also am able to walk around the house without the cane,

However, my left arm and hand are non-functional.  I do deal with spasticity.  Often my fingers and toes are curled.  When I am relaxed that is not the case.

I do believe in the body's ability to eventually heal itself and therefore am positive about recovery.  I have done yoga for the last

20 years and meditation.  For the last year I have walked on a treadmill and my legs have gotten much stronger.  Now I am working out in a pool, doing

exercises and walking.

I am very curious about your method and would like to know how to proceed.  Unfortunately I would not be able to come to India but could do videos.  Thanking you in advance.

K.C.

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Letter 26 - Brain Haemorrhage

Hi Rajul,

I found your site online when browsing and just wondered if a patient who had a brain haemorrhage at the age of 39 and now suffers from severe short term memory can be helped at all or is your treatment just for physical problems?  My sister-in-law had a brain haemorrhage in Oct of 2007 and is able to move about but it is like she is an old woman in her movements, and has put a lot of weight on due to lack of movement.  She also suffers from terrible short term memory.  My brother Kevin and his daugher (21) and son (10) are really devastated but seem to have just accepted that there is no hope in Kerry getting any better.  Kerry herself has no motivation to do anything really including any exercise however slight.  It really is very sad to watch.  I know brain strokes are difference from what Kerry suffered I just wondered if there was anything we could be doing to improve things for Kerry.  Apologies for going on I'm sure you are extremely busy and have been doing excellent work going by your website.  Carry on the very good work you are certainly helping lots of people.

Yours sincerely,
K. McD

Read more: Letter 26 - Brain Haemorrhage